Securing reimbursement for patient centered haemophilia care: major collaborative efforts are needed. Read more about Securing reimbursement for patient centered haemophilia care: major collaborative efforts are needed.
Implications of coagulation factor VIII and IX pharmacokinetics for clinical practice. Read more about Implications of coagulation factor VIII and IX pharmacokinetics for clinical practice.
Hemophilia Prophylaxis: How can we justify the costs? Read more about Hemophilia Prophylaxis: How can we justify the costs?
Why should we Care about Quality of Life in Hemophilia? Read more about Why should we Care about Quality of Life in Hemophilia?
Measuring patient-reported outcomes in haemophilia clinical research. Read more about Measuring patient-reported outcomes in haemophilia clinical research.
Challenges of Patient-Reported Outcome Assessment in Hemophilia Care – A State of the Art Review. Read more about Challenges of Patient-Reported Outcome Assessment in Hemophilia Care – A State of the Art Review.
Recommendations for reporting economic evaluations of haemophilia prophylaxis: a nominal groups consensus statement on behalf of the Economics Expert Working Group of the International Prophylaxis Study Group. Read more about Recommendations for reporting economic evaluations of haemophilia prophylaxis: a nominal groups consensus statement on behalf of the Economics Expert Working Group of the International Prophylaxis Study Group.
Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS). Read more about Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG). Read more about Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG).
Hemophilia joint health score reliability study. Read more about Hemophilia joint health score reliability study.